Researcher · TEACHER · Advocate
"To think, smile and understand a little more.
Demystifying accessibility."
Researcher, speaker and rare disease advocate. My work bridges academic rigor with accessible communication on accessibility, aging populations and Japanese-Brazilian culture.
Quick Facts
My Journey
I am a researcher and advocate specializing in accessibility, urban infrastructure and population aging, with a comparative focus on Brazil, Japan and the USA. My research doesn't stay on the page. I bring theory into everyday life through social media and the internet, because I believe everyone has the right to knowledge.
My experiences as a person with a disability (PWD) and as a Brazilian-Japanese mixed-heritage woman have shaped a unique worldview that I share through talks, courses, and publications in multiple languages.
Passionate about languages, Japanese cuisine, anime and manga, I stay closely connected to my ancestral culture. I try never to stop learning and to expand my horizons whenever possible. I can't get through a day without tea or something to read.
Research Areas
01
A comparative analysis of how Brazil, Japan and the USA approach inclusion in physical and digital spaces. What worked, what failed, and what can and must change.
02
Japan is the world's first super-aged society. What does that teach Brazil? Which policies work, and what can Brazil learn from Japan, and vice versa?
03
Identity, immigration and cultural heritage through a mixed-heritage, critical lens: celebrating without romanticising. From the Japanese diaspora in Brazil to everyday life in Tokyo.
Timeline
2023 – Atual
First Brazilian in the FD/MAS Alliance. Co-host of the first global FD/MAS community meeting for patients and families.
2024
Invited to teach on Population Aging in Japan and what Brazil can learn from it.
2021
Dissertation on the challenges Japan faces as the world's first super-aged society.
2015 – Atual
Member of the Asian Studies research group for over 5 years.
2021 – 2022
Team leader, teacher, translator, editor and mentor. Activities in Brazil with Haitians and Americans to expand access to knowledge.
2016
Faculdades Integradas Rio Branco. Two academic merit awards.
My Personal Story
I am a person with two ultra-rare conditions: Fibrous Dysplasia (FD) and McCune-Albright Syndrome (MAS). My first fracture happened when I was 1 year old. Today I am an advocate in the USA and Brazil, producing content to raise awareness of these conditions and share tips for everyday adaptations.
Part 1 — A Patient Perspective from Brazil Part 2 — When Beatriz met the Alliance! Part 3 — Beatriz Becomes an Advocate The Whole Story hereBrazilian in the
FD/MAS Alliance
Year I became
an advocate
No borders
Portuguese
Native
English
Fluent · TOEFL · CELTA
French
Advanced · DALF C2
Japanese
Intermediate · JLPT N2
Talks & Events
2025
TV GGN, Geopolitics Observatory
Guest
2024
GEASIA Course\, USP
Guest Speaker
2024
FD/MAS Community Event (Global)
Co-Host
2023
SIMPORI, Santiago Dantas
Speaker
2021
ESPM, Japão Super-Envelhecido
Speaker (Webinar)
2021
Health Channel, Fiocruz
Guest
I cover accessibility, aging, Japan and rare diseases in English and Portuguese. Available for academic, corporate and media events.