Speaker Kit

Bia Kaori Mi is a researcher, professor, speaker, and rare disease advocate based in Brasília, Brazil. She holds an MSc from the University of São Paulo (USP), where she is affiliated with NUPRI-Asia, the Asian Studies research group. Her work centres on accessibility, urban infrastructure, and population ageing, with a comparative lens across Brazil, Japan, and the USA — research that bridges academic rigour with public communication.

In 2023, Bia became the first Brazilian advocate in the FD/MAS Alliance, a patient advocacy organisation for Fibrous Dysplasia and McCune-Albright Syndrome — two ultra-rare conditions she lives with. She co-hosted the first global FD/MAS community meeting for patients and families and has produced multilingual advocacy content reaching audiences across three continents.

She has spoken at TV GGN, Canal Saúde (Fiocruz), ESPM, Rádio Senado, and international FD/MAS events, and has lectured for GEASIA/USP. She presents in Portuguese, English, French, and Japanese.

Bia Kaori Mi is a researcher, professor, public speaker, and rare disease advocate based in Brasília, Brazil. She holds a Master's degree from the University of São Paulo (USP) and is an active researcher at NUPRI-Asia, the university's Asian Studies nucleus. Her MSc dissertation examined Japan as the world's first super-aged society, exploring policy, infrastructure, and the lessons available to Brazil and other rapidly ageing nations.

Her research centres on accessibility, urban infrastructure, and population ageing — examined comparatively across Brazil, Japan, and the United States. She works from the conviction that academic knowledge must translate into accessible public communication, and has built a multilingual body of content across social media, writing, and public speaking that reaches non-specialist audiences without sacrificing analytical depth.

Bia lives with two ultra-rare conditions: Fibrous Dysplasia (FD) and McCune-Albright Syndrome (MAS). In 2023, she became the first Brazilian advocate in the FD/MAS Alliance, co-hosting the first global FD/MAS community meeting for patients and families and producing Portuguese- and English-language content supporting other patients navigating the Brazilian healthcare system.

Her media and speaking appearances include TV GGN (Observatório de Geopolítica), Canal Saúde (Fiocruz), ESPM, Rádio Senado, SIMPORI (Instituto Santiago Dantas), the Encontro Discente de Estudos Japoneses, and international FD/MAS events. Her research has been cited by O Globo, Folha de S.Paulo, and the Jornal da USP, and she has published in Carta Internacional.

She holds a BA in International Relations (two academic merit awards), a CELTA in English language teaching, DALF C2 in French, and JLPT N2 in Japanese. Available to speak and present in Portuguese, English, French, and Japanese.