Bia Kaori Mi

Researcher · Professor · Advocate

Olá! Sou Bia Kaori Mi
"To think, smile, and understand a little more. Demystifying accessibility."

Researcher and professor specializing in accessibility, aging, and Japanese culture. Person with disabilities and Brazilian-Japanese — a perspective I share through lectures, publications, and social media in four languages.

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Research

What Do I Research?

01

Accessibility & Infrastructure

02

Population Aging

03

Japanese Culture & Identity

My research focuses on population aging and accessibility and infrastructure, with a comparative lens on Brazil, Japan, and the United States. Japan was the world's first super-aged society — but what does that teach Brazil? And what are Brazil's own specific challenges?

I show what works, what doesn't, and what should be done differently. I support companies, nonprofits, and the public sector in analyzing accessibility and services for older adults.

"I don't believe in keeping research confined to academia. To create real change, we need to engage every layer of society."
Bia Kaori Mi — evento

My Personal Story

What Is FD/MAS?

FD — Fibrous Dysplasia A congenital condition causing bone deterioration, lesions, and fractures.
MAS — McCune-Albright A rare syndrome that includes bone issues (including FD), hormonal irregularities, thyroid involvement, and/or skin pigmentation.

First Brazilian in the FD/MAS Alliance. I am a person with disabilities living with both rare diseases: FD and MAS. My first fracture happened at age one, and it took years to reach a diagnosis.

Since 2023, I have served as an advocate in Brazil and the United States with the FD/MAS Alliance — the first Brazilian to hold this role. I co-hosted the first global FD/MAS community event involving patients and families, and completed the first official Portuguese translation of the Alliance's materials during FD/MAS Week 2024.

It was fantastic and helped me learn so much about myself, about these diseases, and to connect with people from all over the world.
FD/MAS Conference 2023
2023became Advocate (current)

Acknowledgments

This page would not exist without the people below.

Parents and Japanese family

For unconditional love and support at every stage of life, always modeling ethics and generosity.

Friends

For the laughter, lightness, and encouragement.

Professors and advisors

For intellectual richness and guidance.

Equipe das redes & Site: Ana Paula e Diego

For creativity and care from the very beginning, before this project even existed.

Logo creator: Sofia

For artwork that captures who I am.

FD/MAS Community

For connection and shared learning.

Available as a speaker

Bia Kaori Mi as a speaker at your event

Accessibility, aging, Japan, and rare diseases — in English and Portuguese.

Speaker Kit available

Topics, formats, experience, and contact

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